Resilience in Mothers having Children with Disabilities

  • Kishan Kumar Singh Reserch Scholar, Department of Psychology Gurukula Kangri (Deemed to be University), Haridwar Uttarakhand, India.
  • Arun Kumar Associate Professor, Department of Psychology Gurukula Kangri (Deemed to be University), Haridwar Uttarakhand, India
Keywords: Children with Disabilities, Disability, Resilience, Intellectual Disability, Locomotor Disability, Mother

Abstract

In a developing society and community with limited rehabilitation and care services there are major challenges for mothers with disabled children and the responsibility of a child’s growth falls solely on the shoulders of the mother or caregivers. Understanding the resilience in mothers (caregivers) is becoming more important as a process in the area of disabilities, for quality development and caring of children with disabilities. The question tthat comes to mind is, what factors make some families do well in adverse conditions while others fight to keep their family life functional, when they are subjected to similar stresses? The aim of this research is to explore the role of resilience factors in mothers having children with disabilities. This study was conducted to
assess the resilience of mothers who have children with disabilities. In this scientific study all 300 mothers (100 mothers with intellectual disability, 100 mothers with locomotor disability, and 100 mothers of normal children) were selected from northern India. The resilience scales were administered to assess the resilience variable; the scale has the 4-factor solution, which had 31 items: the alpha reliability coefficient was 0.95. The result of the study shows that the F-value for resilience in mothers of intellectually disabled children, children with locomotor
disabilities and of normal children the F value for resilience is 198.379 which is significant at 0.001 levels of significance. This shows that there is difference within the group of mothers of intellectually disabled
children, children with locomotor disabilities and normal children. Findings reveal that the level of resilience is different in mothers of intellectually disabled children, children with locomotor disablilities and normal children. The dentification of factors that promote resilience in mothers of children with intellectual disabilities is likely to advance clinical practice by providing new emphasis in clinical areas in familycentered care. Evidence supports the theory that resilience is linked to the availability and accessibility of culturally relevant resources. The
results are especially important for building a group of resilient mothers who will be involved in their children’s recovery.

How to cite this article:
Singh KK, Kumar A. Resilience in Mothers having Children with Disabilities. Chettinad Health City Med J. 2022;11(3):23-29.

DOI: https://doi.org/10.24321/2278.2044.202225

References

Peer JW, Hillman SB. The mediating impact of coping style on stress perception for parents of individuals

with intellectual disabilities. J Intellect Disabil. 2012 Mar;16(1):45-59. [PubMed] [Google Scholar]

Peer JW, Hillman SB. Stress and resilience for parents of children with intellectual and developmental disabilities: A review of key factors and recommendations for practitioners. J Policy Pract Intellect Disabil.

a;11(2):92-8. [Google Scholar]

Migerode F, Maes B, Buysse A, Brondeel R. Quality of life in adolescents with a disability and their parents:

The mediating role of social support and resilience. J Dev Phys Disabil. 2012;24(5):487-503. [Google Scholar]

Baker BL, Blacher J, Olsson MB. Preschool children with and without developmental delay: behavior problems,

parents ‘optimism and well-being. J Intellect Disabil Res. 2005 Aug;49(Pt 8):575-90. [PubMed] [Google Scholar]

Blacher J, McIntyre LL. Syndrome specificity and behavioral disorders in young adults with intellectual

disability: cultural differences in family impact. J Intellect Disabil Res. 2006 Mar;50(Pt 3):184-98.

[PubMed] [Google Scholar]

Hatton C, Emerson, E. Families with a person with intellectual disabilities: stress and impact. Curr Opin

Psychiatry. 2003;16:497-501. [Google Scholar]

Maes B, Broekman TG, Dosen A, Nauts J. Caregiving burden of families looking after persons with intellectual

disability and behavioral or psychiatric problems. J Intellect Disabil Res. 2003 Sep;47(Pt 6):447-55. [PubMed]

[Google Scholar]

McIntyreLL, Blacher J, Baker BL. Behavior/mental health problems in young adults with intellectual disability:

the impact on families. J Intellect Disabil Res. 2002 Mar;46(Pt 3):239-49. [PubMed] [Google Scholar]

Glidden M, Bamberger KT, Turek KC, Hill KL. Predicting mother/father-child interactions: parental personality and well-being, socioeconomic variables and child disability status. JARID. 2010;23(1):3-13. [Google Scholar]

Green SE. “We’re tired, not sadâ€: benefits and burdens of mothering a child with a disability. Soc Sci Med. 2007

Jan;64(1):150-63. [PubMed] [Google Scholar]

Gerstein ED, Crnic KA, Blacher J, & Baker BL. Resilience and the course of daily parenting stress in families of

young children with intellectual disabilities. J Intellect Disabil Res. 2009 Dec;53(12):981-97. [PubMed] [Google

Scholar]

Herrman H, Stewart DE, Diaz-Granados N, Berger, EL, Jackson B, Yuen T. What is resilience? Can J Psychiatry.

May;56(5):258-65. [PubMed] [Google Scholar]

Hjemdal O, Friborg O, Stiles TC, Martinussen M, Rosenvinge JH. A new scale for adolescent resilience:

Grasping the central protective resources behind healthy development. Meas Eval Couns Dev. 2006;39(2):84-96.

Routledge. [Google Scholar]

Horn SR, Feder A. Understanding resilience and preventing and treating PTSD. Harv Rev Psychiatry. 2018

May/Jun;26(3):158-74. [PubMed] [Google Scholar]

De Terte I, & Stephens C. Psychological resilience of workers in high-risk occupations. Stress Health. 2014

Dec;30(5):353-5.[PubMed] [Google Scholar]

Hopf SM. Risk and resilience in children coping with parental divorce. Dartmouth Undergrad J Sci.

;12(3).

Dorrance Hall E, Shebib SJ, Scharp KM. The mediating role of helicopter parenting in the relationship between

family communication patterns and resilience in first-semester college students. J Fam Commun. 2021

Jan;21(1):34-45. [Google Scholar]

Luthar SS, Cicchetti D. The construct of resilience: Implications for interventions and social policy. Dev

Psychopathol. 2000 Autumn;12(4):857-85. [PubMed] [Google Scholar]

Eisenhower AS, Baker BL, Blacher J. Children’s delayed development and behavior problems:

Impact on mothers’ perceived physical health across early childhood. Soc Sci Med. 2009 Jan;68(1):89-99.

[PubMed] [Google Scholar]

Gray KM, Piccinin AM, Hofer SM, Mackinnon A, Bontempo DE, Einfeld SL, Parmenter T, Tonge BJ.

The longitudinal relationship between behavior and emotional disturbance in young people with intellectual

disability and maternal mental health. Res Dev Disabil. 2011 May-Jun;32(3):1194-204. [PubMed] [Google

Scholar]

Herring S, Gray K, Taffe J, Tonge B, Sweeney D, Einfeld S. Behavior and emotional problems in toddlers with

pervasive developmental disorders and developmental delay: Associations with parental mental health

and family functioning. J Intellect Disabil Res. 2006 Dec;50(Pt 12):874-82. [PubMed] [Google Scholar]

Singh K, Junnarkar M, Kaur J. The assessment of resilience. In: Measures of Positive Psychology 2016

(pp. 35-70). Springer, New Delhi. [Google Scholar]

Baran G, Arda Sürücü H, Hülya Üzel V. Resilience, life satisfaction, care burden and social support

of mothers with a child with acute lymphoblastic leukaemia: a comparative study. Scand J Caring Sci.

Jun;34(2):340-7. [PubMed] [Google Scholar]

Keniş-Coşkun Ö, Atabay CE, Şekeroğlu A, Akdeniz E, Kasil B, Bozkurt G, Karadağ-Saygı E. The relationship

between caregiver burden and resilience and quality of life in a turkish pediatric rehabilitation facility. J

Pediatr Nurs. 2020 May-Jun;52:e108-13. [PubMed] [Google Scholar]

Heydarpour S, Parvaneh E, Saqqezi A, Ziapour A, Dehghan F, Parvaneh A. Effectiveness of group

counseling based on the reality therapy on resilience and psychological well-being of mothers with an

intellectual disabled child. Int J Pediatr-Mashhad. 2018;6(6):7851-60. [Google Scholar]

Fereidouni Z, Kamyab AH, Dehghan A, Khiyali Z, Ziapour A, Mehedi N, Toghroli R. A comparative study on the

quality of life and resilience of mothers with disabled and neurotypically developing children in Iran. Heliyon.

Jun;7(6):e07285. [PubMed] [Google Scholar]

Whiting M, Nash, AS, Kendall S, Roberts SA. Enhancing resilience and self-efficacy in the parents of children

with disabilities and complex health needs. Prim Health Care Res Dev. 2019 Apr;20:e33. [PubMed] [Google

Scholar]

Widyawati Y, Otten R, Kleemans T, Scholte RHJ. Parental resilience and the quality of life of children with

developmental disabilities in Indonesia. Res Dev Disabil. 2021 May;112:103911. [PubMed] [Google Scholar]

Heiman T. Parents of children with disabilities: Resilience, coping, and future expectations. J Dev

Phys Disabil. 2002 Jun;14(2):159-71. [Google Scholar]

Sinha D, Verma N, Hershe DA. Comparative study of parenting styles, parental stress and resilience among

parents of children having autism spectrum disorder, parents of children having specific learning disorder and

parents of children not diagnosed with any psychiatric disorder. AIMDR. 2016;2(4):106-11. [Google Scholar]

Aparício G, Ferreira M, Duarte J, Silva E, Cunha M, Bica I, Albuquerque C, Cabral L. Perception of resilience

in parents and children/adolescents: a comparative study. Acta Paulista de Enfermagem. 2020 Mar 23;33.

[Google Scholar]

Ungar M. The social ecology of resilience: Addressing contextual and cultural ambiguity of a nascent

construct. Am J Orthopsychiatry. 2011 Jan;81(1):1-17. [PubMed] [Google Scholar]

Arakkathara JG, Bance LO. Resilience as a predictor of parental stress among selected mothers of children

with intellectual disability in Kerala, India. Indian J Psychol. 2020;8(1):71-9. [Google Scholar]

Hayes SA, Watson SL. The impact of parenting stress: a meta-analysis of studies comparing the experience of

parenting stress in parents of children with and without autism spectrum disorder. J Autism Dev Disord. 2013

Mar;43(3):629-42. [PubMed] [Google Scholar]

Manor Binyamini I. Mothers of children with developmental disorders in the Bedouin community in

Israel: Family functioning, caregiver burden, and coping abilities. J Autism Dev Disord. 2011 May;41(5):610-7.

[PubMed] [Google Scholar]

Rajan AM, Srikrishna G, Romate J. Resilience and locus of control of parents having a child with intellectual

disability. J Dev Phys Disabil. 2018;30(3):297-306. [Google Scholar]

Mohan R, Kulkarni M. Resilience in parents of children with intellectual disabilities. Psychol Dev Soc.

;30(1):19-43. [Google Scholar]

Published
2022-09-30